The International ALF Registry – ALFregistry.org, was developed to formally assess the outcomes of patients with Acute Liver Failure (ALF), either with spontaneous recovery or requiring liver transplantation with a follow-up of 90 days and 1 year.
Project Summary
- International ALF Registry for Patients with ALF
- Prospective enrolment with a 90-day and 1-year follow up
- Retrospective and prospective capture of outcomes at 12 months.
- PubMed citable co-authorship.
- Access the raw data (after approval) for future studies.
- Center recruitment will open soon.
- The official ALF Registry recruitment start date will be announced here.
How can you get involved?
- Access the study protocol.
- Form a team of up to 3 people to collect data.
- Identify an additional local auditor (data monitor)
- Register your participation
- Obtain necessary local approvals (if required)
- Submit cases to our electronic Case Report Form (eCRF)
We would be delighted to welcome you to collaborate with ALFregistry.org, which is open for participation to any surgeon, anesthesiologist, hepatologist, critical care physician, and their team (maximum 3 members per team) treating patients with ALF worldwide.
All members will have unlimited access to their own submitted data and to the whole dataset for publication upon a formal request from the Scientific Committee.
There will be group authorship for ALFregistry.org members in all publications from this project.